Dear Ken,
While I never had the priviledge of meeting your lovely Helena, I so enjoyed reading her posts on the Restaurant Forum.
My mother also had a rare form of a rare disease and in reading this website brought back many memories (some good, some bad) of the whole medical merry-go-round. She lost her battle at age 60 10 years ago this August.
Even though you do not know me, my thoughts and well wishes, along with the many other posters who "knew" her via the internet are with you and your families.
Sincerely,
Anne Prince